Digital Self-harm Overview:
Self-harm is the infliction of pain or injury onto oneself. Historically these behaviors have been relegated to the fringes of communities. Technology now enables new ways to foster and encourage these dangerous activities. The HCI field possesses few examples of scholarship focused on self- harm. This research focuses on characterizing the presentations of non-suicidal self-harm behaviors within social computing platforms. Building on these characterizations, we can begin to look at diagnostic screeners and tools to better understand how we can start connecting online activities related to one’s mental illness to the physical presentation, detection, and treatment related to their disease.
Building on our survey of the use of Internet technologies and social media by adolescents, we were concerned to receive reports of students publishing reports of destructive behavior, such as eating disorders and cutting, as well as social media content to motivate these behaviors. We completed two studies to understand current practices online for publishing content that promotes self-harm.
In our first study, we describe the shifting nature of lexical patterns associated with self-harm behaviors online. These lexical transformations highlight online practices to evade censorship by the community-at-large or the social media platform itself. Understanding these practices was pivotal in setting an accurate foundation to build upon so we can better understand the real behavior that is taking place online related to these behaviors – the terminology is a gatekeeper to finding the authentic posts online. We used the outcomes of our first study to refine our data collection across several platforms. We then analyzed this data for the types of information being shared within social media platforms. These types included “thinspiration”, the eating disorder journey, diets & food, and connections to other mental health issues like anxiety, depression, and bipolar disorder.
We developed an extensive corpus of self-harm related terminology so that researchers in this space have more accurate data to use when trying to uncover these behaviors. This data can be found here.
Currently, I am working with Dr. Tammy Toscos and her team at Parkview Health in Indiana to ground truth these findings with patients that have been clinically diagnosed with an eating disorder. Additionally, I am interviewing Healthcare Providers to understand how common online issues are in treatment, how they handle these presentations, and what negative influencing factors are routinely the hardest to break during the treatment journey.
Pater, J, and Mynatt, E.D. 2018. Characterizing the Presentation of Eating Disorders Across Social Media Platforms – Lexical Variations, Behavioral Archetypes, and Gender Roles. Proceedings of the 25th AED International Conference on Eating Disorders (ICED). Chicago, IL.
Chancellor, S., Kalantidis, Yannis, Pater, J., De Choudhury, Munmun, & Shamma, David. 2017. Multimodal Classification of Moderated Online Pro-Eating Disorder Content. Proceedings of the ACM Conference on Human Factors in Computing Systems (CHI 2017). Denver, CO. (pdf)
Pater, J., & Mynatt, E.D. 2017. Defining Digital Self-Harm. Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing (CSCW ’17). ACM, New York, NY, USA, 1501-1513. (pdf)
Best Paper Award
Pater, J., Haimson, O., Andalibi, N. & Mynatt, E.D. 2016. “Hunger Hurts but Starving Works”: Characterizing the Presentation of Eating Disorders Online. Proceedings of the 19th ACM Conference on Computer-Supported Cooperative Work & Social Computing (CSCW ’16). ACM, New York, NY, USA, 1185-1200. (pdf)
Chancellor, S., Pater, J., Clear, T., Gilbert, E. & De Choudhury, M. 2016. #thyghgapp: Instagram Content Moderation and Lexical Variation in Pro-Eating Disorder Communities. Proceedings of the 19th ACM Conference on Computer-Supported Cooperative Work & Social Computing (CSCW ’16). ACM, New York, NY, USA, 1201-1213. (pdf)
Best Paper Honorable Mention